| Author |
 Topic  |
|
anne
USA
2 Posts |
 Posted - 07/31/2007 : 00:03:42
|
|
i have cancer all over my arms and chest. It is squamous cell and its very bad. I have had 9 surgeries. This is my third week on efudex and i am so sick and miserable. Does anyone know if this is worth it? Will it be gone after 6 weeks? I feel i can not take much more . I am so depressed.
|
|
|
Martha1
50 Posts |
Posted - 07/31/2007 : 15:42:28
|
Anne, have you seen this link yet? http://www.topicalchemo.com/
It might help to read about someone else's experiences. He used Efudex on his face, and he created a photographic journal of the experience. (You can also find it by clicking on “Sticky: Topical Treatment Pictures” and then on the post by fforest on 7/26/2007.)
Love & prayers,
Martha |
 |
|
|
dan
526 Posts |
Posted - 08/01/2007 : 19:46:46
|
The link Martha1 provided still amazes me because of the anguish that fellow must have endured. I don't know how he kept going. And honestly, the "before" picture didn't seem that bad.
Efudex does work but I wonder if a combo treatment would work better or at least faster. Two things that come to my mind to consider adding are orange oil (d-limonene) and DMSO. Both could help the Efudex penetrate deeper and both have anticancer properties of their own. Keep in mind that any combo treatment has to be regarded as completely experimental. I think the eggplant-vinegar-orange oil+ treatment that fforest used (sticky topic in this forum) is a very promising and hopefully much less painful alternative to consider.
Anne, thanks for the post and know that you are in our prayers. |
|
|
|
SoFl
USA
79 Posts |
Posted - 09/21/2007 : 00:43:47
|
quote:
Originally posted by dan
The link Martha1 provided still amazes me because of the anguish that fellow must have endured. I don't know how he kept going. And honestly, the "before" picture didn't seem that bad.
Efudex does work but I wonder if a combo treatment would work better or at least faster. Two things that come to my mind to consider adding are orange oil (d-limonene) and DMSO. Both could help the Efudex penetrate deeper and both have anticancer properties of their own. Keep in mind that any combo treatment has to be regarded as completely experimental. I think the eggplant-vinegar-orange oil+ treatment that fforest used (sticky topic in this forum) is a very promising and hopefully much less painful alternative to consider.
Anne, thanks for the post and know that you are in our prayers.
Hi Dan.
I have used efudex on my hand, arm, lip, forehead and nose to treat ak's and scc in situ. It works but it's a miserable treatment. It does work though, and one tube is around $100 and it will last a long long time if you don't waste it.
Anyway, I wanted to write to say that I read a paper from one Dermatologist who said that even with regular 5fu treatment some is absorbed systemically. There have been no studies on otherwise healthy people on internal 5fu and the actions it has internally are sort of undefined in a healthy person according to him and since it works by inhibiting DNA synthesis, that's a powerful thing inside you. So, I can't see mixing it with DMSO. I would think that would risk a high blood level that might not be so good. Anyway, I don't think I'd do it and wanted to make sure people consider that angle.
The 5% (5fu) as I;m sure you are aware, is powerful stuff on it's own. If you use it long enough it will go very deep. Basically the way it works on me is that you keep using it and it keeps eating deeper and then finally you get to stop. My derm says 4 weeks on the face, six on the arms and hands (it worked in 4 for me on my hand) and two on the lip. One reason I'm here is to look for better alternatives.
|
|
|
|
anivoc
449 Posts |
Posted - 09/22/2007 : 10:36:02
|
The way they discovered efudex worked on skin cancer is when they were using it as a chemotherapy drug the people being treated for internal cancers ( who also by chance had known or unkown skin cancers) would light up everywhere there was a skin cancer.
What efudex does in 4 to 5 weeks bloodroot does in 24 hours. My derm was blown away by my bloodroot treatment pictures and agreed that it is exactly the same reaction as aldara or efudex but just much faster.
BTW Efudex can be purchased out of Canada or Mexico online for much less. I bought a tube in Tijuana when I was down there for $10. It can be ordered online at several online stores.
Curaderm, Sunspot both use the glycoalkaloids derived from eggplant and seem to get a similar reaction somewhere in between Efudex and Bloodroot.
I am currently experimenting with eggplant vinegar mixture with fingers crossed results so far. Several here (Mexico, Rocco and FForest) have had success using the kitchen sink approach using combos with success. |
Edited by - anivoc on 09/22/2007 10:41:44 |
|
|
|
SoFl
USA
79 Posts |
Posted - 09/22/2007 : 11:16:38
|
quote:
Originally posted by anivoc
The way they discovered efudex worked on skin cancer is when they were using it as a chemotherapy drug the people being treated for internal cancers ( who also by chance had known or unkown skin cancers) would light up everywhere there was a skin cancer.
What efudex does in 4 to 5 weeks bloodroot does in 24 hours. My derm was blown away by my bloodroot treatment pictures and agreed that it is exactly the same reaction as aldara or efudex but just much faster.
BTW Efudex can be purchased out of Canada or Mexico online for much less. I bought a tube in Tijuana when I was down there for $10. It can be ordered online at several online stores.
Curaderm, Sunspot both use the glycoalkaloids derived from eggplant and seem to get a similar reaction somewhere in between Efudex and Bloodroot.
I am currently experimenting with eggplant vinegar mixture with fingers crossed results so far. Several here (Mexico, Rocco and FForest) have had success using the kitchen sink approach using combos with success.
I'm using efudex on a spot on my arm right now...one more week to go to make 4 weeks. It totally sucks I hate that stuff. I bought some sunspot ES and also some of the Cmyllum (probably spelled wrong) and I'm going to use that if anything new pops up in that area to see how it works.
I also mixed up a batch of the eggplant vinegar mixture by just chopping up an organic eggplant and putting it in the blender and using just enough apple cider vinegar to make it into a paste. I'm trying that on a few isolated spots as an experiment.
I've been scared about the bloodroot after I saw a picture of some lady's nose that fell off. I have heard that it only goes after cancerous tissue and I have also heard that it goes after everything and don't know what to believe about that????
I'm a walking chem lab! |
|
|
|
anivoc
449 Posts |
Posted - 09/22/2007 : 12:22:17
|
quote:
Originally posted by SoFl
I've been scared about the bloodroot after I saw a picture of some lady's nose that fell off. I have heard that it only goes after cancerous tissue and I have also heard that it goes after everything and don't know what to believe about that????
I KNOW Bloodroot paste ( at least what I have used ) has no effect on healthy skin ( at least mine ) I did a test spot on my "very white never seen the sun" hip and it had no effect after 24 hours.
Unfortunately the horror stories out there are absolutely true. The problem is they don't include the fact that the woman who lost her nose would have lost her nose with or without bloodroot paste. If it had been Mohs they would have needed to take all the cancerous tissue also. So it is all about the facts there are many people missing ears noses and lips that never used bloodroot but had skin cancer. |
Edited by - anivoc on 09/22/2007 12:36:01 |
|
|
|
SoFl
USA
79 Posts |
Posted - 09/22/2007 : 12:39:43
|
quote:
Originally posted by anivoc
quote:
Originally posted by SoFl
I've been scared about the bloodroot after I saw a picture of some lady's nose that fell off. I have heard that it only goes after cancerous tissue and I have also heard that it goes after everything and don't know what to believe about that????
I KNOW Bloodroot paste ( at least what I have used ) has no effect on healthy skin ( at least mine ) I did a test spot on my "very white never seen the sun" hip and it had no effect after 24 hours.
Unfortunately the horror stories out there are absolutely true. The problem is they don't include the fact that the woman who lost her nose would have lost her nose with or without bloodroot paste. If it had been Mohs they would have needed to take all the cancerous tissue also. So it is all about the facts there are many people missing ears noses and lips that never used bloodroot but had skin cancer.
good info, thanks. |
|
|
|
dan
526 Posts |
Posted - 09/23/2007 : 23:52:38
|
SoFl, there was some info communicated to me from a fellow named Earnest about mixing Efudex with DMSO at http://www.topicalinfo.org/Topical.htm#efudex
The treatment time using the Efudex-DMSO combo was reportedly shortened considerably and the number of treatments was reduced from 56 (28 days at 2x per day) to 4 (4 days at 1x per day). Also four to six week treatments with Efudex cream may result in an unsightly wound in the skin and final scarring. Earnest never noticed any erythema (redness) from the DMSO-Efudex combo nor any final scars.
The treatment specifically was one part by volume of 5% Efudex cream mixed into four parts by volume of 99.7% DMSO. Earnest applied the mixture to the bleeding sore on his ear with a brush. This application was repeated daily for four days. A scab formed and with no further attention came off after about four weeks revealing normal unscarred skin.
Anyway, the reduced number of treatments perhaps mitigates some of the concern about the Efudex being absorbed systemically. Earnest noted that the DMSO-Efudex is also useful for treating fungal infections. Hmmm, there is that skin cancer and fungus infection connection again. |
|
|
|
SoFl
USA
79 Posts |
Posted - 09/24/2007 : 11:18:15
|
quote:
Originally posted by dan
SoFl, there was some info communicated to me from a fellow named Earnest about mixing Efudex with DMSO at http://www.topicalinfo.org/Topical.htm#efudex
The treatment time using the Efudex-DMSO combo was reportedly shortened considerably and the number of treatments was reduced from 56 (28 days at 2x per day) to 4 (4 days at 1x per day). Also four to six week treatments with Efudex cream may result in an unsightly wound in the skin and final scarring. Earnest never noticed any erythema (redness) from the DMSO-Efudex combo nor any final scars.
The treatment specifically was one part by volume of 5% Efudex cream mixed into four parts by volume of 99.7% DMSO. Earnest applied the mixture to the bleeding sore on his ear with a brush. This application was repeated daily for four days. A scab formed and with no further attention came off after about four weeks revealing normal unscarred skin.
Anyway, the reduced number of treatments perhaps mitigates some of the concern about the Efudex being absorbed systemically. Earnest noted that the DMSO-Efudex is also useful for treating fungal infections. Hmmm, there is that skin cancer and fungus infection connection again.
good info again Dan, thanks. I'm just finishing up a 4 week 5-fu treatment on my arm for scc in situ after having two removed in that general area and to be honest I'm really just looking for a better alternative to flouracil at this point. My arm looks like it took some of Cheney's buckshot right now. It itches so much the other night I took a bar of exfoliating soap to it and rubbed it until it was raw.
I plan on trying all the treatments on this board in addition to all the dietary changes I have made which I believe are also very important based on the reading I've done.
I'm doing the eggplant/vinegar and so far I am very encouraged by this treatment...it's just taking suspicious spots all over and making them look less suspicious by the day. I'm also using it on my lower lip which has been a constant source of problems...I've had scc in situ removed surgically and used efudex on it 4 times now over a period of 10 years for an ak band around the lower edge of the lower lip which constantly peels and still having problems but so far three days after using the eggplant/vinegar it looks and feels better than it's felt in many years....extremely encouraging overall result so far compared to everything else I've tried. There is definitely something to this idea.
The total outlay was a couple of dollars for an organic eggplant and 88 cents for a bottle of apple cider vinegar. I'll post more results after a few weeks in that thread.
thanks to you Dan and all the experimenters here for the ideas! |
|
|
|
inneedof411
USA
2 Posts |
Posted - 12/23/2007 : 05:03:46
|
quote:
Originally posted by SoFl
quote:
Originally posted by dan
SoFl, there was some info communicated to me from a fellow named Earnest about mixing Efudex with DMSO at http://www.topicalinfo.org/Topical.htm#efudex
The treatment time using the Efudex-DMSO combo was reportedly shortened considerably and the number of treatments was reduced from 56 (28 days at 2x per day) to 4 (4 days at 1x per day). Also four to six week treatments with Efudex cream may result in an unsightly wound in the skin and final scarring. Earnest never noticed any erythema (redness) from the DMSO-Efudex combo nor any final scars.
The treatment specifically was one part by volume of 5% Efudex cream mixed into four parts by volume of 99.7% DMSO. Earnest applied the mixture to the bleeding sore on his ear with a brush. This application was repeated daily for four days. A scab formed and with no further attention came off after about four weeks revealing normal unscarred skin.
Anyway, the reduced number of treatments perhaps mitigates some of the concern about the Efudex being absorbed systemically. Earnest noted that the DMSO-Efudex is also useful for treating fungal infections. Hmmm, there is that skin cancer and fungus infection connection again.
good info again Dan, thanks. I'm just finishing up a 4 week 5-fu treatment on my arm for scc in situ after having two removed in that general area and to be honest I'm really just looking for a better alternative to flouracil at this point. My arm looks like it took some of Cheney's buckshot right now. It itches so much the other night I took a bar of exfoliating soap to it and rubbed it until it was raw.
I plan on trying all the treatments on this board in addition to all the dietary changes I have made which I believe are also very important based on the reading I've done.
I'm doing the eggplant/vinegar and so far I am very encouraged by this treatment...it's just taking suspicious spots all over and making them look less suspicious by the day. I'm also using it on my lower lip which has been a constant source of problems...I've had scc in situ removed surgically and used efudex on it 4 times now over a period of 10 years for an ak band around the lower edge of the lower lip which constantly peels and still having problems but so far three days after using the eggplant/vinegar it looks and feels better than it's felt in many years....extremely encouraging overall result so far compared to everything else I've tried. There is definitely something to this idea.
The total outlay was a couple of dollars for an organic eggplant and 88 cents for a bottle of apple cider vinegar. I'll post more results after a few weeks in that thread.
thanks to you Dan and all the experimenters here for the ideas!
|
|
|
|
inneedof411
USA
2 Posts |
Posted - 12/23/2007 : 05:06:27
|
Can you please explain the eggplant vinegar solution--how to make it and how to apply it? I'm just finishing week two of the Efudex (which is some scary stuff!!) and I'd love an alternative for the future. Thank you!
quote:
Originally posted by inneedof411
quote:
Originally posted by SoFl
quote:
Originally posted by dan
SoFl, there was some info communicated to me from a fellow named Earnest about mixing Efudex with DMSO at http://www.topicalinfo.org/Topical.htm#efudex
The treatment time using the Efudex-DMSO combo was reportedly shortened considerably and the number of treatments was reduced from 56 (28 days at 2x per day) to 4 (4 days at 1x per day). Also four to six week treatments with Efudex cream may result in an unsightly wound in the skin and final scarring. Earnest never noticed any erythema (redness) from the DMSO-Efudex combo nor any final scars.
The treatment specifically was one part by volume of 5% Efudex cream mixed into four parts by volume of 99.7% DMSO. Earnest applied the mixture to the bleeding sore on his ear with a brush. This application was repeated daily for four days. A scab formed and with no further attention came off after about four weeks revealing normal unscarred skin.
Anyway, the reduced number of treatments perhaps mitigates some of the concern about the Efudex being absorbed systemically. Earnest noted that the DMSO-Efudex is also useful for treating fungal infections. Hmmm, there is that skin cancer and fungus infection connection again.
good info again Dan, thanks. I'm just finishing up a 4 week 5-fu treatment on my arm for scc in situ after having two removed in that general area and to be honest I'm really just looking for a better alternative to flouracil at this point. My arm looks like it took some of Cheney's buckshot right now. It itches so much the other night I took a bar of exfoliating soap to it and rubbed it until it was raw.
I plan on trying all the treatments on this board in addition to all the dietary changes I have made which I believe are also very important based on the reading I've done.
I'm doing the eggplant/vinegar and so far I am very encouraged by this treatment...it's just taking suspicious spots all over and making them look less suspicious by the day. I'm also using it on my lower lip which has been a constant source of problems...I've had scc in situ removed surgically and used efudex on it 4 times now over a period of 10 years for an ak band around the lower edge of the lower lip which constantly peels and still having problems but so far three days after using the eggplant/vinegar it looks and feels better than it's felt in many years....extremely encouraging overall result so far compared to everything else I've tried. There is definitely something to this idea.
The total outlay was a couple of dollars for an organic eggplant and 88 cents for a bottle of apple cider vinegar. I'll post more results after a few weeks in that thread.
thanks to you Dan and all the experimenters here for the ideas!
|
|
|
|
MyEfudex
USA
1 Posts |
Posted - 03/14/2008 : 00:04:09
|
To anyone thinking about or currently going through an Exfudex treatment check out my experiance at www.MyEfudex.com It may be very helpful.
During the healing process I strongly recommend coating the area that had Efudex cream applied with vasoline, It keeps the skin from scabbing, cracking, and itching(make sure you consult your doctor). |
|
|
|
Gunther St
USA
1 Posts |
Posted - 03/20/2008 : 13:56:41
|
MyEfudex posted a very useful message about what to do after completing the treatment, when the redness and scabbing become very uncomfortable. Vaseline was also suggested tome by my Dermatologist, to ameliorate the discomfort. The Efudex home page remarkable fails to mention any means to do something about the treatment aftermath, during healing. A distinct failing.
Another material offered to me was a topical steroid, but foolishly I ignored it.
The DMSO-Efudex suggestion sounds extremely interesting. DMSO aids the absorption/penetration of chemicals through the skin. Many years ago, I tried it with aspirin with DMSO to take care of some muscle pain, and it seemed to help. Now we have Ibuprofen and other NSAIDs. |
|
|
|
atibati
Russia
2 Posts |
Posted - 03/23/2008 : 16:56:40
|
Hello,
Can you say me where can I buy Efudex Cream? Maybe someone can sell it for me and then send it to Russia? |
|
|
|
alelks
2 Posts |
Posted - 03/30/2008 : 22:17:10
|
Hello everyone. I just ran across this site.
My complexion is pretty much the same as the gentleman with link posted above. I am in my 7th day of Efudex treatment and for the last couple of days I have been experiencing the sunburn like pain and the damaged areas are showing up like neon. I am using the Efudex on my entire scalp, forehead, cheaks nose and ears. This is going to be fun (not really).
For some reason my Dermatologist only has me being treated for 2 weeks.
I'm looking at options for my "after treatment" to help alleviate some of the dryness and discomfort. I just ordered some pure Emu Oil and was wondering if anyone has thought of trying this as a moisturizer. I have been using the Blu-emu for a couple of months to help alleviate dry skin on the top of my head (it's bald up there) and it works great with no greasy feeling.
AL |
|
|
|
alelks
2 Posts |
Posted - 03/30/2008 : 22:46:17
|
After reading the thread about what DMSO is I'm now thinking that pure Emu oil may also be an excellent delivery system for various medicines.
I just ordered some from this website which has some good info on what Emu Oil is as well as some of it's uses.
http://emuoildepot.com/index.html
AL |
|
|
|
ched454
USA
1 Posts |
Posted - 05/10/2008 : 11:50:32
|
quote:
Originally posted by inneedof411
Can you please explain the eggplant vinegar solution--how to make it and how to apply it? I'm just finishing week two of the Efudex (which is some scary stuff!!) and I'd love an alternative for the future. Thank you!
quote:
Originally posted by inneedof411
quote:
Originally posted by SoFl
quote:
Originally posted by dan
SoFl, there was some info communicated to me from a fellow named Earnest about mixing Efudex with DMSO at http://www.topicalinfo.org/Topical.htm#efudex
The treatment time using the Efudex-DMSO combo was reportedly shortened considerably and the number of treatments was reduced from 56 (28 days at 2x per day) to 4 (4 days at 1x per day). Also four to six week treatments with Efudex cream may result in an unsightly wound in the skin and final scarring. Earnest never noticed any erythema (redness) from the DMSO-Efudex combo nor any final scars.
The treatment specifically was one part by volume of 5% Efudex cream mixed into four parts by volume of 99.7% DMSO. Earnest applied the mixture to the bleeding sore on his ear with a brush. This application was repeated daily for four days. A scab formed and with no further attention came off after about four weeks revealing normal unscarred skin.
Anyway, the reduced number of treatments perhaps mitigates some of the concern about the Efudex being absorbed systemically. Earnest noted that the DMSO-Efudex is also useful for treating fungal infections. Hmmm, there is that skin cancer and fungus infection connection again.
good info again Dan, thanks. I'm just finishing up a 4 week 5-fu treatment on my arm for scc in situ after having two removed in that general area and to be honest I'm really just looking for a better alternative to flouracil at this point. My arm looks like it took some of Cheney's buckshot right now. It itches so much the other night I took a bar of exfoliating soap to it and rubbed it until it was raw.
I plan on trying all the treatments on this board in addition to all the dietary changes I have made which I believe are also very important based on the reading I've done.
I'm doing the eggplant/vinegar and so far I am very encouraged by this treatment...it's just taking suspicious spots all over and making them look less suspicious by the day. I'm also using it on my lower lip which has been a constant source of problems...I've had scc in situ removed surgically and used efudex on it 4 times now over a period of 10 years for an ak band around the lower edge of the lower lip which constantly peels and still having problems but so far three days after using the eggplant/vinegar it looks and feels better than it's felt in many years....extremely encouraging overall result so far compared to everything else I've tried. There is definitely something to this idea.
The total outlay was a couple of dollars for an organic eggplant and 88 cents for a bottle of apple cider vinegar. I'll post more results after a few weeks in that thread.
thanks to you Dan and all the experimenters here for the ideas!
Can anyone provide the eggplant/vinegar solution? THANKS! |
|
|
|
thanks01
USA
170 Posts |
Posted - 05/11/2008 : 17:48:12
|
COPIED from my original post on this site:
Using externals to attack “the spot”:
I did not take the “kitchen sink” approach, although there were many topical applications recommended on the website that interested me. I had already tried a paste of pancreatin and found it so disruptive that I could not tell what was happening. At the time I started using the website in November there was quite a lot of discussion on using eggplant and vinegar. I read whatever I could find on the anti-cancer, apoptosis-causing properties of eggplant, and found the story about the “Devil’s Apple” in Australia and all the material about Curaderm convincing. Rather than pay for Curaderm right away, I decided on the homemade mixture and found it tolerable when applied.
Also, having never paid any attention to the idea of skin cancer before, I found that on my wrist there was a “freckle” which seemed to have elevated itself about 1/32nd of an inch and then caught on a sleeve, causing bleeding. I didn’t like the looks of that, so I put some of the eggplant mixture there with a bandage. This tiny spot seemed to be improving within days and finally became only the slightest freckle. Because of this and my reading and also because of the discussion on the forum, I decided to use the eggplant mixture and stick with that, rather than mixing a whole lot of things together or switching constantly.
Observing the Eggplant-Vinegar Mixture:
I made the eggplant-vinegar mixture pretty much as indicated on the website. I did use apple cider vinegar but I did not use organic eggplant. I puréed it the best that I could, although the seeds remained. Later on I strained the purée, which is quite timestaking with the raw eggplant, but gives a much more manageable mixture. I kept the mixture in the refrigerator most of the time, but not always. Neither leaving it out for a few days nor letting it get fairly old seem to hurt it.
I started by applying the eggplant with a bandage over the spot, ordinary easy-pull-off bandages (not the stick-tight variety), or the micropore tape, sometimes even masking tape. This worked fine on my wrist, but I found that when the bandage held the mixture near my eye either the fumes or the liquid spreading on my skin or my eyelashes spreading it caused irritation inside my eye. This was tolerable but did not seem to be a good idea.
Next I tried “swiping” the mixture over the main spot as often during the day as I could remember to do it. I think this is when I made the least progress, probably because the quantity was just too thin. Later I went back to applying a good-size “gob” of the stuff over the spot and letting it just dry in place and stay there without a bandage. As one poster to the website mentioned, it seemed that each time the dried-up remainder of the gob was removed some skin peeled off and there were signs of improvement.
Regarding the changes in the spot, as one poster said (FForest, I think), almost as soon as I started with the mixture there was increased definition in the area. My BCC (size of a dime) had at that time left the “crater” stage and gone to a “pearls” stage. After applying the eggplant mixture, these pearls became more visible and seemed to separate from the spot. Over the weeks that I continued, I would say that the “pearls” slowly shriveled, disintegrated, and peeled off, although not completely.
In the middle of the treatment I had to return to the cosmetic surgeon for some questions about the biopsy. I quit using the mixture a couple of days before so that my face would look a bit more normal. And I think it was when I resumed that I started the “gob” application. It seemed that the quantity of mixture now at times was almost too irritating. The entire area of the actual spot and perhaps some places nearby were getting quite sore and red. This is probably desirable, but it leads me to suggest what I next tried with the break for the doctor visit, namely, “taking a vacation” once in a while and letting the surrounding skin kind of catch up and be more generally healthy.
My experience overall favors the “long and slow” approach, if and when I ever have another spot like this to deal with. I understand the concern about penetrating the depth of the spot, which is not named “basal” for nothing – it comes from the base of the skin. But a gradual exfoliation, worked on constantly, with “vacations,” seems constructive to me. Someone might reply that the reason I ultimately required the operation at the end of two months is that I had not reached the depth of the cancer. And I would say yes, that is why more time would be needed, but to have gone “faster” and more destructively did not seem to be a good idea. I think that I got better progress the other way. |
Edited by - thanks01 on 05/11/2008 17:49:57 |
|
|
|
anivoc
449 Posts |
Posted - 05/12/2008 : 11:21:05
|
quote:
Originally posted by atibati
Hello,
Can you say me where can I buy Efudex Cream? Maybe someone can sell it for me and then send it to Russia?
There should be several online pharmacies that can sell it to you. I believe Medsmex.com has it.
Unless Russia does not allow drugs like this to be shipped in.. Not sure of the legalities.. Good luck! |
|
|
|
RichardHtx
USA
1 Posts |
Posted - 09/30/2008 : 16:58:44
|
To atibati: When you obtain some Efudex cream, here is how I have used it. Put a glob less than the volume of a pin head (a sphere of cream less than 0.05" in diameter) on the head of a pin. Rub it over the cancerous spot into a very, very thin layer. It should cover an area of at least 0.25" in diameter (= 6mm diameter) up to as much as 0.4" in diameter. Repeat at least once a day. Maybe twice a day is better if the area gets scrubbed off or washed clean. Application every day is fine but I've found it is not too critical, and if the area gets too sore, let it recover for a few days to a week and if the cancer has not gone, repeat. I've cleared up dozens of small cancers on my face and scalp and several on my neck with only a couple getting too sore. You don't want to overdo the treatment and break thru the skin. Stop and let the skin fully heal as you etch the cancer away thru 10 to 20 layers of skin.
Every modern doc I've asked will not prescribe it now, I think because Americans must swab on way way too thick a coating of the stuff, and end up with a bad chemical burn.
My brother was a Family Doctor and he warned me to use a tiny speck of the cream and rub it out to a very thin layer. One spot on my forehead grew too large (about 0.7" dia.) for my treatment and he numbed it, cut it away, sent the scraps to oncology, who determined it was squamous cell c.). No big deal, but perhaps $150 at a modern doctor. In about a month or so, it was healed nicely, and has never returned. The scar even went away after ten years. I think the trick was that he didn't scrape too deep and maybe was able to leave a layer or two of skin. I believe we are born with about 30 layers of skin.
Efudex was $200 a tube when I priced it here in Va. circa 2007. CanadianDrugCenter-dot-com lists a 40 gm tube for $55.15 US. |
|
|
|
anivoc
449 Posts |
Posted - 10/01/2008 : 09:24:54
|
Welcome Richard and thanks for your detailed description and instructions.
I know that some derms worry that you only get part of the tumor the way you are treating...especially the letting it heal and go back at it.
Nevertheless it's your experience and you know how it worked for you hopefully you are right and you got them all all the way down to bottom of the tumor
What the derms fear is that that area down below can grow basically stealth under cover and end up damaging a lot more healthy tissue than if it had been treated differently or excised.
Or subconsciously or in some cases quite purposely they are motivated by the money they make using their primitive procedures. i.e. the scalpel, freezing etc. |
|
|
|
mark12
USA
7 Posts |
Posted - 11/25/2008 : 00:01:18
|
| hello, thats really good information, and anne, do not worry, just go on with your treatment and you will be happy after! |
|
|
|
jenb
USA
1 Posts |
Posted - 03/29/2009 : 15:16:08
|
| I'm currently finishing about week two of efudex to treat aks and bccs by my eye/nose and on the bridge of my nose. I also have a bcc (hope it's not scc) on my forehead that has been burned twice by dermatologists, only to have it return. The first time it was burned they went deep and left a slight divit and there was pigment loss. I look terrible as a result of the redness and inflamation because of the efudex and am considering stopping and letting my skin heal a little. I've been using it religiously twice a day. I pile on the makeup during the day to hide and stay the heck out of the sun. I have used efudex before with great results. We got our efudex in Mexico a couple of years ago. It does last a long time and to me, is WELL worth the money. I have an aunt who will be going through a mohs procedure next week for two basals and one squamous on her nose. They aren't sure how deep they have to go and she'll probably need skin grafts afterward. My advice to all of you is treat these early, no matter how uncomfortable. Be well and good luck! |
|
|
|
dee2
USA
3 Posts |
Posted - 04/23/2009 : 22:55:14
|
| I hope you will post again and tell me how it's going. I just started 10 days ago and so far it's not TOO bad. Breaking out in neon pink spots on the nose, around my nose, mouth, mostly. The rest of the skin does not seem to effected yet. No overall redness. Some around my mouth have begun to weep a little and others are getting scally. I do try to cover it during the day with make-up but it's getting harder. |
|
|
|
queenslander
USA
1 Posts |
Posted - 04/25/2009 : 17:29:56
|
Greetings everyone. This is my first contribution to this discussion. I just wanted to tell you all that I had a very positive experience with efudex. i am extremely fair skinned and was raised in subtropical Queensland (skin-cancer central), Australia (now living in America). I recently turned 50 and have had chronic problems with sun damaged skin for the last twenty or more years. i have had countless aks and bccs removed with liquid nitrogen and several sccs removed by mohs procedures. Until a year ago, when I decided drastic action was required, I had literally dozens of keratoses and such on my face.
Last annual vacation I sequestered myself away (with wife and then 4-year old daughter) to a country cottage and started the treatment. I was religious about it, applying the cream twice daily (7am and 7pm), lightly massaging liberal but not excessive amounts into the skin of my entire face, leaving a "safe" half-inch zone around the eyes and lips.
Every morning, I took a gentle shower (no soap on the face, just lots of warm water) and patted my face dry with a soft, clean towel. I would then apply the cream. At 7pm I would rinse my face in warm water and apply the cream again.
Not a lot happened in the first few days, but by the end of the week dozens of red spots had emerged. By the tenth day these spots had grown in width and become bright red and sensitive to the touch. I had so many aks and bccs that I lit up like a fire truck. The only parts of my face that weren't red were the areas I'd previously had treated. In any case, I stuck it out--two applications a day for 14 days, exactly.
It wasn't pretty in the second week and it took about ten days to heal once I stopped (the worst of the healing process was over in about seven days). There's no denying that the spots were unsightly. I looked as though I'd been burned, but I lay low and tried to remain hopeful. By the last application, my skin was raw and inflamed. I continued to shower in the morning (still no soap on the face, just a thorough rinse), but now applied, rather gingerly, a coating of aquafor. Same again at night.
I healed remarkably quickly. within three or four days, aks and bccs (some deep and nasty) were washing off with the morning shower. I estimate I had at least 50 to begin with, and after seven days, all but a small few in the area under my eyes had simply peeled off and been replaced by soft, new skin. The remainders took a few more days to work their way loose and I continued to peel lightly in places for another week or so. Beyond that I was a little ruddy for another couple weeks. Folks just assumed, ironically, that I'd gotten "a little too much sun." But my skin now looks and feels better than it has in decades. It's really quite remarkable, and people have remarked. And more importantly, I have nipped a lot of future problems in the bud.
I'm a year out now and though showing my age and bearing some scars from this and other battles, my skin is now soft and clear. Of course I am now super careful about protecting it from the sun.
While I am sure I will continue to have problems with sun damaged skin, at least I now feel like I'm on top of it, whereas, before, the problem spots were so numerous as to be overwhelming. |
|
|
|
dee2
USA
3 Posts |
Posted - 04/25/2009 : 21:26:56
|
| thank you for sharing that. my skin continues to redden and it feels like I have bad burns on my face. |
|
|
|
emu lady
USA
2 Posts |
Posted - 05/30/2009 : 22:59:11
|
Hi, Along with my husband we own a emu oil processing plant. I have been using Efudex for almost 2 weeks. I have been taking pictures also. I went to the doctor with 2 spots on my face and he said skin cancer, use Efudex for 2 weeks. The nurse said to use it over my whole face just in case. I now have sores and redness all over my face. So embarrassing although I try not to pay attention. I plan on using our Ultra emu oil and mositurizer as soon as I am done with this. 3 more days, YEAH!!!!!! I know emu oil will work. Just make sure the emu oil that you use is AEA certified. That is the only guarantee that the emu oil you are using has been certifed to reach the trade rules for fully refined emu oil.
quote:
Originally posted by alelks
Hello everyone. I just ran across this site.
My complexion is pretty much the same as the gentleman with link posted above. I am in my 7th day of Efudex treatment and for the last couple of days I have been experiencing the sunburn like pain and the damaged areas are showing up like neon. I am using the Efudex on my entire scalp, forehead, cheaks nose and ears. This is going to be fun (not really).
For some reason my Dermatologist only has me being treated for 2 weeks.
I'm looking at options for my "after treatment" to help alleviate some of the dryness and discomfort. I just ordered some pure Emu Oil and was wondering if anyone has thought of trying this as a moisturizer. I have been using the Blu-emu for a couple of months to help alleviate dry skin on the top of my head (it's bald up there) and it works great with no greasy feeling.
AL
|
|
|
|
dan
526 Posts |
Posted - 06/01/2009 : 00:58:08
|
| Emu lady, thanks for the post. The Efudex experience is not much fun. Please let us know if emu oil helps your healing. BTW, there have been testimonials on the internet regarding emu oil clearing up skin cancer all by itself. Did you happen to give emu oil a try before seeing the dermatologist? I also wonder if Efudex and emu oil combined might be beneficial. |
|
|
|
Susan Bauer
1 Posts |
Posted - 06/19/2009 : 17:22:49
|
| This is my first time on this topic line. I also have been dealing with skin problems for 20 years. I have had Mohs surgeries,(none on my face) on my hands, feet, legs and am now using efudex (fluorouracil) on my legs. I first used it on my arms and chest (eight weeks), what a sight!! Misery for sure - done with that and I am better. My legs are a different story. I have been using efudex for four weeks and the derm wants me to use it for another 2 months. I am sooo tired of using, that I am almost desperate. Has anyone had swelling while on the rx? My ankles and feet and legs are swollen. I am nervous about it going into my system, as I have used efudex for a very long time. Two days ago I stopped putting it on and my swelling went down. Do I go back on it? The derm told me that it could cause depression - yep that too. I am reading about Emu Oil, did the derm recommend it? How do you use it? Please if anyone has anything to help, I am open. Thanks |
|
|
|
Summer5644
1 Posts |
Posted - 01/15/2010 : 11:31:35
|
Hello,
I just finished my Efudex treatment (two weeks) on my cheeks and temples. I have to say it has been the most agonizing pain I have ever felt. Somehow, the cream managed to move up my cheek and got onto my eyelids which caused major iritation and swelling.
Vaseline was very helpful during this time. I kept the skin moisturized and reduced the burning sensation.
Now that I am finished with the Efudex my dermatologist prescribed Hydrotone which is a vaseline based hydrocortizone cream 2.5%. I put it on last night and my husband and I could not believe the change it made within a few hours. The inflamation has already been reduced and the burning is gone. There is still a good deal of itchiness, but the cream helps elminate some of it.
Also, if anyone who is taking it is having trouble sleeping during treatment the best thing I found is Benadryl. It knocks you out and helps some of the symptoms.
Just some tips for anyone who is or may need to use this form of treatment again. According to my doctor, skin cancer will likely be an on going problem for me due to the amount of sun damage I have done to myself thanks to tanning beds and years of sunbathing.
Good luck and hang in there to anyone is using Efudex. I am pretty hopeful that in the end it will be for the best! |
|
|
|
dan
526 Posts |
Posted - 01/16/2010 : 12:01:56
|
| Thanks Summer5644! Your practical tips should be helpful to many and I hope your Efudex treatment will work to prevent skin cancers later. I just wanted to add that my doctor said skin cancer would be an ongoing problem for me also. He was right, but nine years later, I doubt I would hear the same counsel. The many little steps I have taken toward skin cancer prevention have made a enormous difference in my skin health, whereas the expectation was my skin health would further deteriorate over time. By skin cancer prevention I mean employing various nutrition strategies as I really have not used sunscreens but for a few times over those years. |
|
|
|
NaturalSAHM
USA
11 Posts |
Posted - 01/16/2010 : 17:18:26
|
| Dan, would you mind giving us some detail about what you're doing (or not doing) these days as far as diet, supplements, etc? I know you've mentioned some things in the past but I'm sure you've tweaked it here and there. Just curious. Thanks!! |
|
|
|
SunDevil
1 Posts |
Posted - 01/18/2010 : 17:09:57
|
| I have been using Efudex for 13 days now on my arms and legs for AK with little noticeable reaction. My arms feel sunburned and a bit itchy but not much else. I have been applying cream 2x daily, regular dosage times. Has anyone else experienced this delayed reaction time? |
|
|
|
dan
526 Posts |
Posted - 01/21/2010 : 23:54:43
|
| NaturalSAHM, thanks for asking, see the sticky post in the Skin Cancer Prevention Forum http://www.topicalinfo.org/forum/topic.asp?TOPIC_ID=54 for a quick general overview. The supplements I take are not real consistent over time, but lately it is a multivitamin (Source Natural Life Force no iron just 1 tablet instead of the 2 suggested), Coenzyme Q10 100mg, Trader Joe's Omega 3, astaxanthin, vitamin K2, 3000 IU vitamin D, 500mg vitamin C complex, magnesium, and grape seed extract 200mg. At night I take 3mg melatonin and sometimes Source Naturals Pancreatin 8X. For breakfast I often have yogurt mixed with ground flaxseed (part of the Budwig protocol). I look for organic produce, cage free eggs, organic butter. I try to routinely do most of the things I wrote about in the forum post. It all seems to be working for me. |
|
|
|
richnjannsarah
United Kingdom
1 Posts |
Posted - 05/01/2010 : 08:09:49
|
Hi,
I have used the efudex for an extra 5 days after reading that at least 4 weeks treatment would be necessary and previous 4 week treatments still had the lesions appearing at the 4 week point.
my face healed quickly to a degree after stopping the treatment.
But I still have redness on my face which is there 2 months after the treatment stopped-and its not getting better.
I appreciate this may now be a chemical burn caused by overuse of the cream.
My dermatoligist seems to be at a loss as to how/if the redness can be treated.He has prescribed an anti biotic,Tetralysal 300.He thinks the blood cells are damages causing blood to leak out into my face and thus making the red patches go even redder.
Am I now stuck with these red patches , which get redder with heat/exercise or can anything be done?
I fear it is too late.
Any advice would be greatly appreciated.
Thanks.
Richard |
|
|
|
tim3236
USA
1 Posts |
Posted - 05/11/2010 : 16:36:08
|
I am a male 66 yrs old living in Fl I have had many precancer cell removed over the years by freezing them I went to the Dr and she gave me a choice I could freeze them again or use Efudex I chose efudex after seeing what it does to you I am having second thoughts also thinking of using the efudex in small areas at a time and eventually doing the entire face has any one ever usedit inthat way are there any reasons not to do it that way.
Thanks for any help this stuff is really powerful stuff
Tim3236 |
|
|
|
gary.wright
Australia
1 Posts |
Posted - 12/13/2010 : 03:59:16
|
Hi tim3236
I used Efudex about 6 months ago on my just about my whole face(male 58). I have a history of skin cancers (frozen and cut out). Treatment was twice a day for 2 weeks. The process is uncomfortable and a bit painful towards the end and is very unsightly. But it really works. The results for me were great and I considered it worth the pain and hassle.
I took a break for a few months and now am a week into doing my arms. I saw a lot of forums on Efudex before my first treatment so I knew what was coming. People have different experiences and different reactions to the process but just about everyone says that the results are good. By the way I had some hemorrhoids cut out about a month ago - that's real pain and I would rather do the Efudex than repeat that one.
Good luck
Regards
Gary |
|
|
|
Bryan Kravitz
USA
2 Posts |
Posted - 01/09/2011 : 23:00:05
|
quote:
Originally posted by anne
i have cancer all over my arms and chest. It is squamous cell and its very bad. I have had 9 surgeries. This is my third week on efudex and i am so sick and miserable. Does anyone know if this is worth it? Will it be gone after 6 weeks? I feel i can not take much more . I am so depressed.
|
|
|
|
Bryan Kravitz
USA
2 Posts |
Posted - 01/09/2011 : 23:07:02
|
My friend who has stopped using Efudex about a week ago and then began using the Golden Salve by Equinox Biotanicals and she now is doing much better. I know where to get The Golden Salve.
quote:
Originally posted by gary.wright
Hi tim3236
I used Efudex about 6 months ago on my just about my whole face(male 58). I have a history of skin cancers (frozen and cut out). Treatment was twice a day for 2 weeks. The process is uncomfortable and a bit painful towards the end and is very unsightly. But it really works. The results for me were great and I considered it worth the pain and hassle.
I took a break for a few months and now am a week into doing my arms. I saw a lot of forums on Efudex before my first treatment so I knew what was coming. People have different experiences and different reactions to the process but just about everyone says that the results are good. By the way I had some hemorrhoids cut out about a month ago - that's real pain and I would rather do the Efudex than repeat that one.
Good luck
Regards
Gary
|
|
|
|
samdi230
Canada
24 Posts |
Posted - 01/13/2011 : 15:29:11
|
quote:
Originally posted by Bryan Kravitz
quote:
Originally posted by anne
i have cancer all over my arms and chest. It is squamous cell and its very bad. I have had 9 surgeries. This is my third week on efudex and i am so sick and miserable. Does anyone know if this is worth it? Will it be gone after 6 weeks? I feel i can not take much more . I am so depressed.
hi I'm not a DR I'm a patient like you .I have surf all cure treatment on the web
I tray what make seance to me . I cure my salf by what it call 35% food grade H2o2
delite it by distlete water 1 part of H2o2 and 11 part of distelet water soak a cotton bole and play the wound by this mix 1/11. 10 to 15 time a day. You will be cure in lass then a week. |
|
|
|
honebone
1 Posts |
Posted - 01/27/2011 : 20:16:44
|
| I've found the worst part of the Efudex experience to be the recovery period; if you want to avoid cracking, burning and itching after you've stopped using Efudex, use A&D ointment. Just slather it on whatever area is bothering you and the relief is almost instantaneous...of course your face looks very greasy while it's on but who cares! |
|
|
|
bmir439
USA
1 Posts |
Posted - 02/07/2011 : 14:47:20
|
| I was just diagnosed with bcc on my legs and actinec keratoses on my chest and have been prescribed Efudex. So far I've been told to use for two weeks and schedule an appt with my gp after that two weeks (dumb me didn't think to ask why). This sounds like it's supposed to be bad....will I be able to wear clothing over my chest while this is taking place? Has anyone had that problem? |
|
|
|
rovin
USA
1 Posts |
Posted - 02/13/2011 : 11:43:24
|
I just finished my first two weeks fluorouracil 5% over my face and bald scalp. My doctor told me it would feel like a sunburn. Didnt say "like the worst sunburn you could ever imagine"
My face turned bright red after about 4 days and the area around my nose soon after became swollen and cracked. Very painful. My scalp was nowhere near as painful or red.
I am now starting another two weeks of fluocinolone acetonide .025. Can I expect some relief from the pain and swelling shortly? Is this just a less powerful version of the first treatment?
The vaseline sounds like a good idea. Do I need to wait two hours after using the cream to apply it? I tried using moisturizer once. It was agonizing and the stinging lasted for an hour or more before it subsided to the "normal" pain level .
Thank you to all that posted their experiences and suggestions. My sister is talking about trying 5fu. I am afraid to tell her of the full extent of the pain I experienced. Sounds like most suffer from substantial pain. Is this true? Should I tell her what to possibly expect?
I have completed the treatment and am pleased with the results. I had not been prepared by the Dr. for the intensity of the discomfort, and it took me by surprise. I would hope the next time I am required to do this the level of damage to my skin will have been lessened, and so also the degree of treatment discomfort. |
Edited by - rovin on 02/27/2011 11:23:38 |
|
|
|
samdi230
Canada
24 Posts |
Posted - 02/27/2011 : 18:24:24
|
quote:
Originally posted by anne
i have cancer all over my arms and chest. It is squamous cell and its very bad. I have had 9 surgeries. This is my third week on efudex and i am so sick and miserable. Does anyone know if this is worth it? Will it be gone after 6 weeks? I feel i can not take much more . I am so depressed.
hi I have good news for you get a food grad %35 h2o2 delete it with destitute water 1 part of h2o2 to 11 parts of water [ wear a robber gloves when you mix it] now sock cotton swob and play this mix only on the wound of yours now you will see a fuss on the wound that the cancer is dying apply this mix 12 to 15 time a day in mean time inhale this mix 3 time a day you be surprise how fast you well heal. When you got better spreed the world . To buy H2o2 go to farmer supply or nutrition stores .or on line good luck. |
|
|
|
jackiew
Canada
2 Posts |
Posted - 03/08/2011 : 14:30:39
|
This sounds like it's supposed to be bad....will I be able to wear clothing over my chest while this is taking place? Has anyone had that problem?
[/quote]
Sounds like you started your treatment 1 week before me. I started on Feb 14th. I have SCC and had a lump on my cheed removed so this Efodex is my next step to recovery. My doctor told me 2x day for 3 weeks. Was wondering why each person seems to be told a different length of time. How does 3 weeks manage to do the same result as say 4 or 5 weeks? Does anyone happen to know that answer?
I am doing my face in quartely sections, not sure why the doctor told me to do this other than maybe she thought my whole face at once was to hard on me. Finished me forhead on Monday, now on to my one cheek. I have not yet suffered any real pain like others are saying they had. Just now is red, raised blistered and ugly, but not too much pain. |
|
|
|
jackiew
Canada
2 Posts |
Posted - 03/08/2011 : 14:58:20
|
| was wondering if any one has ever used celestoderm v cream to help reduce redness and burning AFTER the efodex treatment is done.It is a cream used for swelling, itching burning for skin conditions ( betamethasone valerate) |
|
|
|
David P.
USA
2 Posts |
Posted - 03/16/2011 : 13:30:41
|
| Just finished a 2 week efudex treatment on my whole face. I had nothing on my forehead or chin but had several AK's on my cheeks,nose and between my eyes and sideburns. My dermatologist prescribed Desonide which I'm finding to help the healing process. I've had many treatments with liquid nitrogen and I sure hope this treatment and my change of way's(respect of the sun) will keep me out of the doctors chair except for checkups. |
|
|
|
David P.
USA
2 Posts |
Posted - 03/25/2011 : 22:47:50
|
| It's been 3 week's and 3 day's since I started Efudex and my face is completely healed. If you have been told to do this treatment do it, it is well worth it. |
|
|
|
suesie2000
Australia
3 Posts |
Posted - 04/05/2011 : 02:52:28
|
| I am currently on week two of Efudix 5%. I look terrible and it feels terrible as well. Have way more skin cancers on my face than I realised. I am supposed to keep applying the cream for another week but my skin is broken, sore and pussie in places that I don't know if I should. I will be pleased when it is all over and I can go out in public again. Luckily I have a makeup that is like spac filler for covering up the damage. LOL |
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 04/14/2011 : 05:08:06
|
Hi Suesie 2000, We are just across the ocean from you in South Africa and I am in the same stage of efudex treatment as your good self - day 17 for me. My face looks like something out of the chamber of horrors - a human raw hamburger.
It all started with a couple of little dry patches on my cheeks that would not go away. I went to see the Doc and then a Derm and was told it was Solar Keratosis and if I had left it a year or so I would have had skin cancer. Right now I am feeling near on suicidal -I keep wondering if I will ever look normal again. Anyway, I went down to the pharmacy yesterday because one of the pharmacists has done the Efudex treatment himself. I got no sympathy whatsoever - I was asked if I wanted the good news or the bad news. So I opeted for the bad news - I was told that it would get worse. So I asked what the good news was and was told that once treament was complete my face would be as smooth as a baby's bum. So there is light at the end of the tunnel! Ciao Uncle Paul |
|
|
|
Longdrop
Papua New Guinea
17 Posts |
Posted - 04/19/2011 : 00:26:25
|
| I was told to use Efudex by my dermatologist for 14 to 21 days on my face and stopped after 18 days when it began to interfere with sleeping and I was bleeding onto the pillow. The dermatologist recommended Sigmacort (1% cortisone cream) afterwards and I have also been using Dermaveen moisturiser (their other products are good too). Sigmacort seems to have the most ulcer reducing effect and Dermaveen to be more effective against discomfort. It has been a week since I stopped and the swelling and redness are down by about half. The obvious solar keratoses have certainly gone and I had about 50 other red patches as well. Much better and cheaper than surgery but Efudex does make you feel pretty ugly and uncomfortable for a few weeks. |
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 04/24/2011 : 07:24:41
|
Hi Longdrop,
Like yourself I have just finished the Efudex treatment and still look a bit of a wreck - face looking like a part cooked hamburger garnished with fish scales.I managed to stick it out for 21 days but the last 5 days was a real mission. Today is 1 week after the cessation of the treatment and is the first time that I have felt relatively at ease going outside without cowering under a big floppy hat. In retrospect I don't think that I could go through the Efudex treatment cycle again - the last part was absolute hell - as you say I couldn't sleep with the discomfort, I was bleeding and my face looked dreadful. However, having said that I don't know what the alternaive treatment is like. Any ideas?
Best wishes,
Uncle Paul
|
|
|
|
Longdrop
Papua New Guinea
17 Posts |
Posted - 04/28/2011 : 01:05:09
|
Hi Uncle Paul. You did well to last three full weeks! I am now about two weeks since I stopped and still cower under my latest and newest hat! The skin has subsided beautifully though and the pain and tightness is all gone.
The alternative treatments I have tried have been cryotherapy and surgery. The former was relatively painless and worked on about half the cancers. Surgery always worked well but is disfiguring, occasionally painful and invariably expensive. The last session with an infiltrative BCC on my shin which I had left too long involved a skin graft, thousands of dollars and 10 days off work with my leg in the air watching Oprah. Not recommended. All the best. |
|
|
|
thanks01
USA
170 Posts |
Posted - 04/29/2011 : 17:24:40
|
| People! Stories like Longdrop's above are the reason why we have this forum. We have not yet found one, single, definitive approach, but there are many useful attempts and contributions here. We have to remember that BCC and squamous cell cancer can deeply affect people's health and lives and pocketbooks. I really think this forum can contribute to finding reasonable, inexpensive solutions that will not cause suffering. I encourage all to keep contributing, so that these stories of suffering will cease. And, to Longdrop, all the best! |
|
|
|
sparkih
USA
8 Posts |
Posted - 04/29/2011 : 20:43:44
|
| I think I'm a wimp. I'm only on day 3 of a 2 week efudex treatment and the itching is driving me crazy. I'm just doing my forehead and it's almost all covered in red, raised spots. Is this normal to react this way after only 3 days? |
|
|
|
sparkih
USA
8 Posts |
Posted - 04/30/2011 : 07:06:42
|
| Just wanted to say I am afraid to do this. I thought I only had 3 or 4 spots but it's my whole forehead. It seems like it's all blistered after 3 days. Do you think I may have used too much efudex? Also, do I dare stop? I just put my 86 year old father in the hospital and my mother had 2 strokes - all in a 2 week span so I'm under a lot of stress and I wonder if adding efudex treatment is just too much for me right now. I just want to cry. |
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 04/30/2011 : 08:16:32
|
Hi Sparkih,
Courage my friend - a week ago I finished 21-days of Efudix - as I said to Longdrop the last 5-days was absolute purgatory. The only reason that I hung in was because on the web I saw some dudes who looked worse that I did- well, just a bit worse! Today I have a few skin flakes left but otherwise I look better than I did about 10-years ago! So grit your teeth and pray for day 21 - it does get better very quickly.
Cheers,
Uncle Paul |
|
|
|
sparkih
USA
8 Posts |
Posted - 04/30/2011 : 08:35:42
|
quote:
Originally posted by uncle paul
Hi Sparkih,
Courage my friend - a week ago I finished 21-days of Efudix - as I said to Longdrop the last 5-days was absolute purgatory. The only reason that I hung in was because on the web I saw some dudes who looked worse that I did- well, just a bit worse! Today I have a few skin flakes left but otherwise I look better than I did about 10-years ago! So grit your teeth and pray for day 21 - it does get better very quickly.
Cheers,
Uncle Paul
|
|
|
|
sparkih
USA
8 Posts |
Posted - 04/30/2011 : 08:40:02
|
| Thanks Uncle Paul. I will hang in there. Is it typical for my forehead to be all blisters after only 3 days. Or at least it feels like one big mass of red blisters. |
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 04/30/2011 : 10:48:47
|
Hi Sparkhi,
I'm afraid to say it has got to get worse before it gets better. As I said to Longdrop my face looked like a raw Hamburger and later on it looked worse becaued of the flaking skin. However, recovery is pretty quick once you stop. The day after I stopped I used a homeopathic ointment called "Traumeel" (German) it is supposedly for sports injuries. It was recommended by my pharmacist, who also had to take a course of Efudix himself, he said that it worked well for him. This dude actually endured 6-weeks of Efudix - my absolute max was 21-days. FYI day 15 was the worst for me, at that point I thought that I would be scarred for life. However, once all the bits fall off you emerge with a face looking very smooth and fresh. I had a haircut yesterday and, as I said before, I looked 10-years younger this morning. Give me a shout when and if you think you have reached the limit. Good luck!
|
|
|
|
Longdrop
Papua New Guinea
17 Posts |
Posted - 05/01/2011 : 03:12:36
|
quote:
Originally posted by sparkih
Thanks Uncle Paul. I will hang in there. Is it typical for my forehead to be all blisters after only 3 days. Or at least it feels like one big mass of red blisters.
Hi Sparkih and Uncle Paul. Sorry to say I agree with Uncle Paul. You got to keep doing it. Never miss a treatment, keep going as long as you can, try to avoid covering it with makeup, avoid the sun, and appreciate it will get worse and worse. I found the worst bit was the day after I stopped - I loved the moisturiser then. Now three weeks after stopping I just look as if I have German Measles and the skin is wonderfully soft and itch free, the spots fading by the day. Make sure you do the whole face though with the thinnest of films, you will be surprised what pops up and where. My forehead was covered in the little beasties (OK so I have a large forehead!).
All the best and remember the better you do it now the less likely you have to do it again. And congrats whoever started this site, I wish I had found it sooner, and thanks for everyone's inpur. There is something especially horrible about being prescribed a cream which makes you uglier by the day!
And yes my spots started to come out on day 2! |
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 05/01/2011 : 07:04:11
|
Hi Longdrop,
I did send a reply to you on April 29 but it seems to have gone astray. Thanks for the details of the alternatives to Efudix they sound a bit hairy to me and some quite frightening. I have made such a swift recovery from my Efudex treatment that, as I said to Sparkhi, I had a haircut on Thursday and most of the flaking had gone, so I looked 10-years younger! I used, on the recommendation of my pharmacist, a homeopathic cream called "Traumeel". it is made by the Heel brand name (German). As you say the Efudex cream looks quite harmless and I still cannot get over how the contents of such an innocent looking little package can wreak such havoc in such a short time.
I will continue to monitor the site for a while to give a bit of encouragement to others that may have felt as miserable as I did a couple of weeks back.
Best wishes,
Uncle Paul |
|
|
|
sparkih
USA
8 Posts |
Posted - 05/01/2011 : 19:11:17
|
quote:
Originally posted by Longdrop
quote:
Originally posted by sparkih
Thanks Uncle Paul. I will hang in there. Is it typical for my forehead to be all blisters after only 3 days. Or at least it feels like one big mass of red blisters.
Hi Sparkih and Uncle Paul. Sorry to say I agree with Uncle Paul. You got to keep doing it. Never miss a treatment, keep going as long as you can, try to avoid covering it with makeup, avoid the sun, and appreciate it will get worse and worse. I found the worst bit was the day after I stopped - I loved the moisturiser then. Now three weeks after stopping I just look as if I have German Measles and the skin is wonderfully soft and itch free, the spots fading by the day. Make sure you do the whole face though with the thinnest of films, you will be surprised what pops up and where. My forehead was covered in the little beasties (OK so I have a large forehead!).
All the best and remember the better you do it now the less likely you have to do it again. And congrats whoever started this site, I wish I had found it sooner, and thanks for everyone's inpur. There is something especially horrible about being prescribed a cream which makes you uglier by the day!
And yes my spots started to come out on day 2!
|
|
|
|
sparkih
USA
8 Posts |
Posted - 05/01/2011 : 19:21:48
|
| Thank you Longdrop and Uncle Paul. Everything you have said is going to help me get though this. I went and bought two hats today so I can go out in public. If the itching gets really bad, do you think putting ice on my forehead would be OK? Or will that just remove the cream? I thought maybe the ice would numb it. |
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 05/02/2011 : 02:10:37
|
Hi Sparkih,
Re ice on your forhead - I really don't know the answer to that, but I would think that it should be OK. From what I understand from my pharmacist the Efudex is absorbed more or less straight away - rather like Vanishing Cream. However, just try to stick to your twice daily applications - I know that it's hell, but do it! Great idea to get a large hat, because the sun is approaching its maximum altitude in your location on June 21. One of the golden rules of the treatment is to try to keep out of the direct rays of the sun as much as possible.
My own problem was caused by not using sun block on the beach - I hate the stuff. For many years I have been associated with Surf Lifesaving especially with the training of youngsters - we teach our kids aged 8-14: "SLIP-SLAP-SLOP". SLIP on a top/SLAP on a hat/SLOP on the sun block. Unfortunately I did not practice what I preached. From henceforth sun block is in and so are big hats. So, Sparkih, watch that sun from hereon, especially April thru' August. Down South here in Cape Town the sun is not too strong right now, but I'm taking no chances.
Anyway, back to your problem - you will have to grit your teeth and pray for your target date to arrive. It will seem an eternity, but you will start looking really great in a very short time thereafter. Good luck and keep at it - we are here to support you!
Ciao,
Uncle Paul |
|
|
|
sparkih
USA
8 Posts |
Posted - 05/02/2011 : 21:24:50
|
quote:
Originally posted by sparkih
Thank you Longdrop and Uncle Paul. Everything you have said is going to help me get though this. I went and bought two hats today so I can go out in public. If the itching gets really bad, do you think putting ice on my forehead would be OK? Or will that just remove the cream? I thought maybe the ice would numb it.
|
|
|
|
sparkih
USA
8 Posts |
Posted - 05/02/2011 : 21:31:09
|
| Hi Uncle Paul. I'm sitting here with an ice pack on my head and it seems to help. I also went and bought 3 hats today with brims that cover my forehead. I just keep going 1 hour at a time. Again, thank you for all of your support. |
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 05/08/2011 : 12:19:27
|
Hi Sparkih,
Howzit? No posts from you for a week - are you still hanging in? You must possibly be at about at the worst stage by now, if you are persisting with the tratment. Everybody who sees me now compliments me on how fit and well I look - in fact if I didn't have a few facial scars from a car accident I reckon I would be looking like a film star! So if you are at the stage where you think that you may be scarred for life - forget it and carry on with the Efudex. There is a new you just waiting to emerge after the scaling process has finished. Good luck!
Kindest regards,
Uncle Paul
|
|
|
|
mickapoo
4 Posts |
Posted - 05/08/2011 : 21:07:40
|
quote:
Originally posted by sparkih
If the itching gets really bad, do you think putting ice on my forehead would be OK?
I applied ice to various portions of my face during treatment as well. It was actually one of the more effective means of controlling the discomfort. I used the soft gel ice packs, and would have one in the freezer getting cold while the other was on my face. This allowed me to get some sleep at night!
Please see my website at http://www.hybriddesign.net/efudex for my Efudex treatment journal and photos! |
|
|
|
mickapoo
4 Posts |
Posted - 05/08/2011 : 21:09:51
|
quote:
Originally posted by sparkih
If the itching gets really bad, do you think putting ice on my forehead would be OK?
I applied ice to various portions of my face during treatment as well. It was actually one of the more effective means of controlling the discomfort. I used the soft gel ice packs, and would have one in the freezer getting cold while the other was on my face. This allowed me to get some sleep at night!
Please see my website at http://www.hybriddesign.net/efudex for my Efudex treatment journal and photos! |
|
|
|
miki333
USA
1 Posts |
Posted - 05/16/2011 : 10:13:40
|
Hi All,
I'm so glad I found this forum. I'm on my last day of a 3 week 2x daily regime of Effudex. My upper chest I believe has responded well or should I say as it should have. However I was also instructed to apply the cream on the forhead mostly around the hairline. There are a couple of crusty spots but some that have popped up but nothing really happening a far as crusting..just red/brownish spots. My concern is that if I stop, will these spots which weren't there at the onset of this treatment eventually fade or am I stuck with them? Still have some cream left so wondering if perhaps I should continue in these areas? I was instructed to use the Effudex for the 3 weeks but can 't
get in to see my Derm til June 6. I would hate to have to do this whole darn thing again.Is there anyone who has had a similiar experience? Thanks |
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 05/16/2011 : 12:43:51
|
Hi mikki333,
I saw my Derm to day and got the all-clear - whew! I did raise the point with him about missing a treatment for a day or so and he said that you must stick with it - no gaps. My Derm is a highly qualified plastic surgeon, so I guess he knows what he is talking about. I am afraid that I can't say more than that. So it looks like you should just keep slopping on the Efudex till you run out of the ointment. I am told that Efudix will not attack healthy skin cells. Good luck!
Best regards,
Uncle Paul |
|
|
|
mjpinner
USA
1 Posts |
Posted - 05/19/2011 : 23:45:08
|
Hello all,
Have been reading with much interest. I was prescribed efudex in Mar 2011. I applied to my lower lip on the left (my left) side on March 5th. I applied twice a day for 2 weeks and then waited for the coming effects of pain, itching, crusting, pealing etc, etc. Well it is now May 20 and my lip is still one big non healing scabby piece of raw meat. There is a gouge on the inside of my lip that is very slowly closing. But the rest of the area is very sore and ugly. Not healing. The doc who prescribed it now has me applying peroxide to keep the bacteria away and bacitracin (3 x's daily) to keep lip moist. But after some initial progress of scab reduction I think my lip much worse off now after. Any suggestions? |
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 05/20/2011 : 02:43:39
|
Hi mjpinner,
From what I have read you appear to be being treated by a Doc. I would suggest that you make an appoiontment with a Dermatologist. I say this because my Doc sent me straight away to a Derm - he said that my problem appeared to be Solar Keratosis, but that he didn't want to risk a mis-diagnosis. The Derm told me that my condition was indeed SK, but had I left it for a year or so it would probably have turned cancerous. On my last visit to the Derm he told me that once the SK became cancerous Efudex would not touch the problem. Beyond that I'm afraid I can't say any more. Good luck with the Derm!
Kind regard,
Uncle Paul |
|
|
|
Maraika
Australia
3 Posts |
Posted - 05/21/2011 : 03:01:39
|
Thank you for your positive information. I can so relate to the damage done to my own skin. I am on my last day of treating my whole face for 28 days with Efudex and have all the pain and raw skin you mention. Along with having a depleted Immune System, due to the treatment, that resulted in a very large cold sore that made everything so much more painful and difficult. It is not much fun!!! But was pleased to read your excellent results and in a shorter time frame than I was dreading. Australian sun is harsh but no one told us how much it would harm us in later life when we were young. I have taken almost daily pictures of my treatment and only need to look at these to remind me to use sunscreen every day.
quote:
Originally posted by queenslander
Greetings everyone. This is my first contribution to this discussion. I just wanted to tell you all that I had a very positive experience with efudex. i am extremely fair skinned and was raised in subtropical Queensland (skin-cancer central), Australia (now living in America). I recently turned 50 and have had chronic problems with sun damaged skin for the last twenty or more years. i have had countless aks and bccs removed with liquid nitrogen and several sccs removed by mohs procedures. Until a year ago, when I decided drastic action was required, I had literally dozens of keratoses and such on my face.
Last annual vacation I sequestered myself away (with wife and then 4-year old daughter) to a country cottage and started the treatment. I was religious about it, applying the cream twice daily (7am and 7pm), lightly massaging liberal but not excessive amounts into the skin of my entire face, leaving a "safe" half-inch zone around the eyes and lips.
Every morning, I took a gentle shower (no soap on the face, just lots of warm water) and patted my face dry with a soft, clean towel. I would then apply the cream. At 7pm I would rinse my face in warm water and apply the cream again.
Not a lot happened in the first few days, but by the end of the week dozens of red spots had emerged. By the tenth day these spots had grown in width and become bright red and sensitive to the touch. I had so many aks and bccs that I lit up like a fire truck. The only parts of my face that weren't red were the areas I'd previously had treated. In any case, I stuck it out--two applications a day for 14 days, exactly.
It wasn't pretty in the second week and it took about ten days to heal once I stopped (the worst of the healing process was over in about seven days). There's no denying that the spots were unsightly. I looked as though I'd been burned, but I lay low and tried to remain hopeful. By the last application, my skin was raw and inflamed. I continued to shower in the morning (still no soap on the face, just a thorough rinse), but now applied, rather gingerly, a coating of aquafor. Same again at night.
I healed remarkably quickly. within three or four days, aks and bccs (some deep and nasty) were washing off with the morning shower. I estimate I had at least 50 to begin with, and after seven days, all but a small few in the area under my eyes had simply peeled off and been replaced by soft, new skin. The remainders took a few more days to work their way loose and I continued to peel lightly in places for another week or so. Beyond that I was a little ruddy for another couple weeks. Folks just assumed, ironically, that I'd gotten "a little too much sun." But my skin now looks and feels better than it has in decades. It's really quite remarkable, and people have remarked. And more importantly, I have nipped a lot of future problems in the bud.
I'm a year out now and though showing my age and bearing some scars from this and other battles, my skin is now soft and clear. Of course I am now super careful about protecting it from the sun.
While I am sure I will continue to have problems with sun damaged skin, at least I now feel like I'm on top of it, whereas, before, the problem spots were so numerous as to be overwhelming.
|
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 05/21/2011 : 03:45:05
|
Hi Maraika,
Wow 28-days you are a hero! I wanted to wave the white flag at 15-days but stuck with it to the prescribed 21-days. The last 10-days was hell - I felt almost suicidal. However, having been cleared by the Derm, last week I am ulta-positive about the efficacy of the Efudex treatment. Like you in OZ, the South African sun is near vertical in mid-summer and with our cool Cape Town SE wind it is so easy to get roasted! Henceforth it's big hats, lots of sun block and a re-visit to the Derm this time next year. Well done YOU!
Kind regards,
Uncle Paul |
|
|
|
Maraika
Australia
3 Posts |
Posted - 05/21/2011 : 06:05:06
|
Thank you soooo much. I don't feel brave. Have felt like crying quite a few times but knew that salty tears would hurt my face more. I have had small bouts of Depression on and off during but remember how thankful I am not to have anything more serious. Specialist said no need to come back unless I had a problem. Everyone has a different reaction. But most of them quite painful. One of the other members asked about the safety of ice packs. I would be better to use cool packs rather than ice as it may possibly damage already compromised cells. I had to use the cream twice a day for 2 days then once a day till 4 weeks. Would rather have had twice a day for 14 days and have it over with. I also suggest changing pillow slips every day as even a small amount of the cream on the slip can affect delicate tissue, eyelids, corners of ears or nose.
I was told not to use any moisturizer during the treatment, nor makeup, and not to go into the sun. I have to wait a couple of days after the last day before using any skin care and it will feel like bliss. Another tip is to avoid rubbing your nose as any cream that may come into contact with your hand and your nostril will make the inside very dry. I used lots of paw paw ointment for that. Thanks for all the encouraging messages in this group. |
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 05/21/2011 : 10:50:49
|
Hi Maraika, Yep you sound as if you suffered as I did but for longer. My pharmacist, who also had to suffer as we did , recoomended TRAUMEEL during the recovery period. It is a German cream made by HEEL, so I guess that it's available in OZ. My Derm said that it was just fine to use Traumeel. The question of using a moisturizing cream during the treatment seems to have a bit of a question mark over it. I was tempted to use it, but decided against against using it because I couldn't face the possibility of it impairing the action of the Efudex. As I have told others, use Efudix twice a day for 21-days, keep out of the sun, wash your hands after applying the cream and then grit your teeth and pray for day 21. I have to say now my face has never looked better and my skin is as smooth as the proverbial baby's bottom! Good luck with the recovery period - I was looking pretty normal after 2-weeks.
Good luck,
Uncle Paul |
|
|
|
Longdrop
Papua New Guinea
17 Posts |
Posted - 05/22/2011 : 01:42:06
|
Hi Maraika and Uncle Paul and the poorguy using effudex on his lip. Keep with it Maraika! I stopped a month ago and my forehead, which had thirty of the little beasts, is now quite clear, fresh and soft. On the bright side it has also lost quite a few wrinkles!
Someone earlier suggested that the Effudex does not affect healthy cells. This is not quite true apparently. The active ingredient, fluorouracil, is an old cytotoxic (cell killing)chemotherapy drug (c1956?) and works by interrupting RNA-DNA cell synthesis. It affects cancer cells first as they are replicating fastest but would eventually start to affect the healthy ones, which is why we get quite short lengths of treatment. My doctor says he has read of treatment lengths up to 11 weeks. Agony!
All the best to you all and God bless the person who set up this site! |
|
|
|
adm
Australia
2 Posts |
Posted - 05/22/2011 : 05:42:02
|
I recently completed 21 days (2 applications per day) of Efudex treatment on my face and it was very uncomfortable and unsightly to say the least. After 2 weeks it started to burn and I was very embarrassed to show my face in public. I returned to my dermatologist for a check up and he told me I had a severe reaction and that I could stop the treatment. It took another 3 weeks before my skin fully recovered, including peeling, and they were among the worst days of my life. I wish I had prepared better and known in advance what to expect, I would have stocked food so that I didn't have to go out shopping.
One month later my skin is still pink/red in patches but I hope it is not permanent scarring. Other than that it is very smooth and my AKs (including all the ones I never realized I had) seem to have gone. I think I will apply the cream again to my face in another year or so to really get on top of it all.
Based on my experience here is my advice:
prepare for 3 - 4 weeks of isolation and stock up on essential items including food so you can just chill out at home.
have some good books on hand and an internet connection.
have your family visit you and make regular phone calls so that you dont get too depressed.
don't apply moisturizers or makeup during treatment.
use water only to wet the face and gently blow dry after.
don't touch scratch the skin as your fingers/nails have a lot of bacteria on them.
if itching is too hard to resist, use a tissue to dab the spot but dont scratch or rub with fingers.
after crusting/scabbing has healed use aloe vera or mebo cream to soothe the skin and aid the healing process.
think positive and remember it is temporary - it will get better! |
|
|
|
adm
Australia
2 Posts |
Posted - 05/22/2011 : 05:57:58
|
I forget to mention that MEBO (Moist Exposed Burn Ointment- Contains
Beta-sitosterol 0.25%, Sesame oil 92%, Beeswax 7.75%)cream is the very best ointment for healing burns and helping the skin heal quickly. It is based on sesame oil and comes from China. By Supporting Stem cell regeneration it also helps to minimise scarring. In addition, it helps cool the affected skin and has a soothing effect.
I had an excellent dermatologist (trained in US) at Bumrungrad hospital in Bangkok, Thailand recommend it to me after I had erbium laser treatment there a couple of years ago. Apply it liberally as much as you want and don't use water to wash it off until skin is healed - it's magic! Seems like doctors/dermatologists here don't know about it. |
|
|
|
Cheeno
Australia
2 Posts |
Posted - 05/23/2011 : 08:59:58
|
| I am wondering if anyone else is using Efudex the way I have been told to? Twice a day but for only two days a week and continue until the redness stops? I am into my 3rd week and so far have only had a reasonably minor reaction. I am using it on my nose and several spots on my cheeks and forehead |
|
|
|
Nelson
Australia
1 Posts |
Posted - 05/25/2011 : 01:48:43
|
I'm amazed that this string has lasted all this time, but then I shouldnt be - it is cancer we are talking about after all. My skin specialist has just recommended Efudex for a scc on my cheek (which has had a biopsy) but he reckons they didnt get it all.
After reading all of the posts in this forum I will NEVER use Efudex. I have, however, found a fabulous treatment called 'The Black Salve'. I applied this salve to a small skin cancer on my nose and within 2 weeks it had totally attacked the cancer, turned into a little scab and fell of leaving a small indentation which I am told will self-heal and fill in.
You can read all about the magical ointment here www.blacksalve.com.au
I will NEVER use Efudex or another cream they prescribe called Adlara. This Black Salve is amazing. I am now going to apply it to the site of the scc biopsy and see what happens. Stay tuned. |
|
|
|
Longdrop
Papua New Guinea
17 Posts |
Posted - 05/25/2011 : 02:34:45
|
Hi Nelson. I'd be very cautious about using Blacksalve or any other escharotic. If you search for it on Wikipedia there is a pretty damning article as there also is on the NZ Dermatology site at http://www.dermnet.org.nz/treatments/escharotics.html
The alternative treatment you are referring to is Aldara, which is a bit more fiddly to use than Efudex and should only be used on small areas and not open lesions I understand.
Sorry to hear a biopsy did not remove your SCC but then again the purpose of the biopsy is to determine the nature of the growth not remove it. I have however had a tiny SCC removed from my scalp by a biopsy procedure and confirmed by another biopsy of the site. |
|
|
|
Maraika
Australia
3 Posts |
Posted - 06/04/2011 : 00:49:37
|
| 2 weeks after 28 day treatment using Efudex. At the end of 28 days my face was burning and very, very painful. I was told not to use anything on my skin till I saw the specialist 4 days later. He said I had severe reaction and that the worse the reaction the better the end result. I was to use a topical hydro cortisone - for 7 days only. Then to go onto a good safe moisturizer. The redness would last for several more weeks, possible up to 6 weeks. It felt like bliss to not have the scabbing and cracking. Now 2 weeks on I have some very thick scabs in patches and one bad one top of cheek bone where I lost the scab during my sleep and it bled. I can see clear, clean patches where my skin feels smooth. I am starting to feel a little better about going out in public soon. I expect that another 2 weeks will make all the difference although many times I have had my doubts. It could have been a lot worse!! |
|
|
|
deruo
Canada
16 Posts |
Posted - 06/16/2011 : 08:43:38
|
Hi everyone, new member here. I'm glad I came across this site.
My derm prescribed me Efudex 5% and I had no idea of what I was getting until I picked it up and Googled it. Now I'm freaking out! Chemo? He made no mention of some of the stuff I'm reading and photos I'm seeing. He said this was an alternative to the nitrogen burnings, twice a day for a month.
I work with the public everyday so I don't know how thats going to work. I don't know if I can do it. (A good opportunity to educate people maybe....)
I suppose I'm fortunate that i haven't had any surgeries yet, and we're doing this to get rid of pre-cancerous nasties.
Unfortunately, getting another appointment quickly with him to ask questions isn't very easy. So I'm debating about whether and when to start this. It seems like everyone's experience is a little different, depending on the level of damage to their skin.
I look forward to reading more here and will contribute once I start - in the meantime I'll just curse "the Coppertone Tan" we were chasing back when were younger. |
|
|
|
FlaLadyB
USA
12 Posts |
Posted - 07/20/2011 : 16:52:41
|
I am new at that this too. Just joined and posted wrong, but.
Dr. just prescribed Efudex. I work with the public too, I'm a Realtor, how does the Dr expect me to live and work while using this? It's not going to happen after seeing the photos. I dont have the money to seclude myself for 4-6 weeks. How did you people handle this? |
|
|
|
Longdrop
Papua New Guinea
17 Posts |
Posted - 07/20/2011 : 19:18:37
|
| HI FlaLadyB. The last two weeks of treatment and the first two weeks after are the worst but I kept working all through. People were generally very sympathetic and kept telling me it was getting better. The alternatives of surgery and nitrogen burning are both more expensive and disfiguring (hugely so in the case of surgery). I wish I had done Efudex earlier and am very happy with the result - the furrows on my 60 year lod forehead have effectively disappeared! |
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 07/21/2011 : 00:28:38
|
| Hi FlatLadyB - I totally agree with the comments from LongDrop - go for it - the alternatives are ghastly. Just wear a big hat and brave it out. Just about everybody I met were very sympathetic and some even went scuttling off to their docs to get themselves checked out. So - grit your teeth and you will emerge looking like a new person. In fact on an overseas visit, some 2-months after the treatment, I got many comments on how fantastically fit and youthful I looked. |
|
|
|
FlaLadyB
USA
12 Posts |
Posted - 07/21/2011 : 10:52:16
|
but how am I going to work with my face looking like raw hamburger meat? I'm single too and that makes it even harder. I wouldnt be able to go any where!
I can handle doing my chest and lower arms, but my face? |
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 07/21/2011 : 14:29:23
|
| Hi FlaLadyB, As I said before the majority of people were most sympathetic to my condition and provided that you wear a big hat you can get by. It might even boost your sales! Remember it's not forever, whereas if you have to undergo surgery then it could be permanently disfiguring. Possibly high summer is not the best time to go about taking the Efudex cure. So maybe wait a couple of months until the sun is less strong. If you have some vacation due to you, then start the week before and then hide away for a couple of weeks, if you feel that you must do so. Therafter you will be on the mend. My own recovery was very swift once I stopped the Efudex applications and started using a soothing balm. However, believe me, the end really does justify the means! You will look like a film star within 6-weeks! |
|
|
|
FlaLadyB
USA
12 Posts |
Posted - 07/21/2011 : 14:34:43
|
I dont have vacation. I don't have 6 weeks to look like raw hamburger.. I can't hide away. I MUST work. Its only me and the bills. Wearing a hat just wont get it.. its my face, not my head.
|
|
|
|
deruo
Canada
16 Posts |
Posted - 07/21/2011 : 14:45:40
|
Flalady, like you I am a Realtor and also had qualms about working with clients while using Efudex. Although my dermatologist doesn't seem to think that it'll be that bad, I'm not convinced. We'll see once I start.
Either way, you have two choices. Do nothing and take the risk of having to have surgery or developing melanoma, or doing the thing with Efudex and know that you're reducing the chances of getting skin cancer in the future.
My dermo gave me the go ahead to do the treatment in the fall, when the sun isn't so strong, and I can take a week or so to work at home and maybe reduce the amount of time I have to spend with clients. Those that see me will ask and I will tell them what is going on.
|
|
|
|
FlaLadyB
USA
12 Posts |
Posted - 07/21/2011 : 14:55:57
|
well me being in Florida doesnt help
My alternative is to do the Photodynamic Therapy but I haven't seen much said about it on here. Seems like it would be less envasive.
I know doing the efudex would be best, but after reading and seeing all the things that happen to people, its really hard to even think about doing it unless I can disappear for a few weeks and hide in the dark.
I know.enough whining.. still
|
|
|
|
Cheeno
Australia
2 Posts |
Posted - 07/21/2011 : 19:51:34
|
| I am currently using Efudex and am very happy with the results BUT my doctor has a different approach. I am using it twice a day but for only two days a week and will continue for several weeks. I have finished a 7 week session, had a 2 week break to see how it's gone and am now back on another 7 - 8 week session. I certainly have a reaction and the areas become red but have had no major, severe reaction so have been able to continue going out etc. Perhaps my initial problem wasn't as severe as others but I have been having various other treatments for several years with good results but the problem areas kept returning after a few years.My doctor has said he doesn't need to subject me to the intense severe treatment - he believes he'll get the same results by treating over a longer period. He is highly respected in his field. Like all forum posts this is my personal experience that is working for me and may not be appropriate for others but I have posted this to show that there is another way to use this treatment. I am very happy with the results but who knows what will be happening next year! |
|
|
|
Longdrop
Papua New Guinea
17 Posts |
Posted - 07/21/2011 : 20:03:27
|
| FlaLady, there is some evidence that mild sun exposure improves treatment efficacy. The important thing though is to follow the regime the doc prescribes and don't stop too soon. It is not so bad and people ARE very sympathetic. My son came for a visit and said I looked years younger! |
|
|
|
JennT
2 Posts |
Posted - 07/25/2011 : 11:07:43
|
Has anyone had an issue of squamous cell on the face being mis-diagnosed with Lupus of the skin? Three biopsys in different areas came back as either actinic keratosis or squamous. I went for a second opinoin on treatment. The Dr. was convinced it was not cancerous so I asked him to take yet another biopsy. The pathology came back as lupus.
Am now on my 7th day of treatment (for the 2nd time) with Efudex and the spot diagnosed as Lupus is reacting the same as the AK/SCC spots. Just curious if anyone else has experinced the same thing. |
|
|
|
SherylWA
Australia
2 Posts |
Posted - 08/16/2011 : 00:42:59
|
I am on day 2 of Efudex for my face, arms and chest. I am so glad I stumbled onto this site. Reading your comments and hints is extremely helpful, and now I know what I'm REALLY in for!
|
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 08/16/2011 : 04:00:10
|
| Hi SherylWA, I wish you luck with the treatment - as you may have gathered from the site it gets a bit uncomfortable especially towards the end but stick with it and you will emerge feeling better and looking much better. I would not like to have repeat the process but I would do so without hesitation, if required, knowing that it is a very temporary treatmentthat that really works. I would be much happier going out than I was originally and meeting people. I got a lot of sympathy and encouragement when I did so and even got "special prices" on some of my purchases from those that felt sorry for me! So, when and if it gets a bit yukkie for you, just grit your teeth and pray for day 21! You will emerge, a couple of weeks thereafter, looking like a film star! |
|
|
|
FlaLadyB
USA
12 Posts |
Posted - 08/16/2011 : 10:05:03
|
I have a question about the cost of efudex. Has anyone found a reputable less expensive place to order it? The price here is $350 a tube with no insurance. The generic is still $250. My Dr. says some of his patients found it for $150. I will have to go hunting once I decide to do it. Not ready yet and its too hot in Fla.
Also, do you use one tube, or more? |
|
|
|
JennT
2 Posts |
Posted - 08/16/2011 : 16:58:53
|
quote:
Originally posted by FlaLadyB
I have a question about the cost of efudex. Has anyone found a reputable less expensive place to order it? The price here is $350 a tube with no insurance. The generic is still $250. My Dr. says some of his patients found it for $150. I will have to go hunting once I decide to do it. Not ready yet and its too hot in Fla.
Also, do you use one tube, or more?
You can contact the manufacturer of the product. In some cases they can give you discounts or tell you the best place to purchase at a discounted rate. Chain's such as WalMart, Kroger, Target, etc have great generic discount programs and may be able to offer assistance. I am using the generic this time and is working the same as the brand name.
I am using twice daily on my face and chest for 6 weeks. Yesterday I started my 4th week and opened my 2nd tube. |
|
|
|
SherylWA
Australia
2 Posts |
Posted - 08/16/2011 : 22:06:59
|
Thank you so much Uncle Paul. Now on day 3 and nothing much has happened. My Dr didn't go into much detail on this treatment, so just by reading the comments on this site I am now better informed on the issues that will arise. I have taken 5 weeks off work so hopefully this will all be over by then.
|
|
|
|
Gideonwolf
USA
3 Posts |
Posted - 08/17/2011 : 15:13:59
|
I just want to say thanks to all who posted here
I live in Denver and have Squamos cell carcenoma.
I started Efudex treatment 3 weeks ago and found this site at that time.
the first week was easy, the second the itching started and third was about the same except for when applying the Efudex...tough to put it on during that 3rd week. Twice a day.
Finished last night, and now face is peeeling, blotchy, and red..
Anyone know if the red should be uniform across the whole face?
How long for the healing process?
Interesting that my nose was solid red and not my whole forhead |
|
|
|
Longdrop
Papua New Guinea
17 Posts |
Posted - 08/17/2011 : 18:44:49
|
| Gideonwolf, I understand that the active ingredient of Efudex is cell poison (cytotoxic) which is selectively taken up by the cells duplicating themselves the fastest (ie the cancerous and pre-cancerous ones). The amount of redness and blotches depends on how many precancerous cells you had and how long you apply the cream. In my case the blotches were mostly on my forehead and left hand side. I also found the blotches went down quite quickly and were barely visible after three weeks. I used a mild cortisone cream for the first week and Dermaveen moisturiser afterwards. Good luck and thanks again to Dan the site designer and host (I think) |
|
|
|
Longdrop
Papua New Guinea
17 Posts |
Posted - 08/17/2011 : 18:56:53
|
| Hi again FlatladyB. I can't let your post go by! Efudex at $350 a tube? In Australia it cost me about $15 with a doctor's prescription. The active ingredient of Efudex (Fluorouracil) is one of the oldest chemotherapy drugs and was patented in the 50's so any patents have long expired surely. The US health system really needs a shake up if Efudex at $350 is an outcome! |
|
|
|
Gideonwolf
USA
3 Posts |
Posted - 08/17/2011 : 19:09:56
|
| I went through the same thing - not much happened the first 5 or 6 days - most of it started up the second week |
|
|
|
Irishgirl
USA
0 Posts |
Posted - 08/18/2011 : 18:52:58
|
| Hello, I am on Day One of 6 to 8 weeks Efudex treatment for "superficial" SCC on my chest. It is a samll spot and i think i can handle the ugly blistering etc as I just had about 30 AK frozen off of my face, hands and arms and I still look awful. However, I am totally freaked out about what this stuff will do internally to my healthy cells. I have read really scary stuff about Aldara and wonder how similar it is to Efudex. Doesn't 6 to 8 weeks seem long for something the derm said was "very early" and superficial? Has anyone tried "Perrin's Cream" for AK's or SCC with any success? Is it a type of Black Salve? Thank you so much for any insight. I know that this will probably not be the last diagnosis of BCC or SCC due to the number of AKs but I would like to stick to the natural route as I freak out taking an asprin. |
|
|
|
sldavid
USA
2 Posts |
Posted - 10/14/2011 : 21:10:45
|
For those of you who are new to Efudex I would highly recommend reading the insert which comes with the cream. I have been using this cream for several years on different areas of my face. Have learned a few tricks in the process. I try to focus on one small area at a time. When it starts to look too unsightly, I cover it with a bandage (perfectly acceptable according to the insert) when I need to be out it public. Make sure the bandage fits loosely over the area avoiding the adhesive sticking to the wound. Since I focus on one area at a time I sleep on the other side of my face to avoid bleeding which avoids prolonging the healing time.
I have found thru experience that the wound will tell me when I can stop applying the ointment. When a scab forms, cease the Efudex.
Withing 2-3 weeks the scab will start to drop from the area. After the scab is gone apply Aquaphor (OTC) to the affected area to promote healing.
I never use any product other than Efudex on the spot I am treating once I have begun the process. While it may be uncomfortable during the 3-6 weeks of dealing with ak or bcc I am so grateful to have this alternative to surgery. |
|
|
|
gebgeroboys
Philippines
2 Posts |
Posted - 10/15/2011 : 03:17:22
|
| Uncle Paul with the information you give your positivity is great. and also the rest of you who give information. I have question my Derm told me to talk the Efudex for 3 to 4 weeks how do you know if you should stop at 3 weeks. Im an American in the Philippines 42 retired early so its easy for me to take the medicine. I'm on day 15 and it is red itchy and burning. |
|
|
|
gebgeroboys
Philippines
2 Posts |
Posted - 10/15/2011 : 03:31:09
|
Hello Uncle Paul your information is very positive. im on day 15 and it is red itchy and burning the doctor said 3 weeks or 4 weeks how do I know if i should stop at 3 weeks.quote:
Originally posted by uncle paul
Hi Sparkhi,
I'm afraid to say it has got to get worse before it gets better. As I said to Longdrop my face looked like a raw Hamburger and later on it looked worse becaued of the flaking skin. However, recovery is pretty quick once you stop. The day after I stopped I used a homeopathic ointment called "Traumeel" (German) it is supposedly for sports injuries. It was recommended by my pharmacist, who also had to take a course of Efudix himself, he said that it worked well for him. This dude actually endured 6-weeks of Efudix - my absolute max was 21-days. FYI day 15 was the worst for me, at that point I thought that I would be scarred for life. However, once all the bits fall off you emerge with a face looking very smooth and fresh. I had a haircut yesterday and, as I said before, I looked 10-years younger this morning. Give me a shout when and if you think you have reached the limit. Good luck!
|
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 10/15/2011 : 06:20:49
|
Hi Gebgeroboys,
Thanks your kind comments re the treatment. I cannot advise you on the 3-week or 4-week options because I am not qualified to do so. My Derm told me 3-weeks applying Efudex twice daily. By the time day 20 had arrived I was counting the hours to my last application - at that stage I don't think that I could have gone on any further. However, I did apply a soothing cream called Traumeel thereafter and a week or so later I started to look and feel much better. I guess if you have enough Efudex cream left and can handle another week after day 21 then that's probably the way to go. The bottom line is that the treatment really does work and I am now 6-months down the line without a blemish on the previously affected parts of my face. I have to go back to the Derm next year April but would have no hesitation whatsoever to using Efudex again if I had to. Good luck with the next week or so - it's not pleasant but it's nice to know that it is only a temporary discomfort - so go for it! |
|
|
|
BigD
Australia
8 Posts |
Posted - 10/15/2011 : 22:33:31
|
| For all those using efudex please have a look at the petty spurge thread, a natural plant solution with far superior results. I have used both and will only use Petty Spurge from now on |
|
|
|
gebgeroboys
Philippines
2 Posts |
Posted - 10/19/2011 : 05:51:10
|
I talk to my Derm she said i can stop after 21 days I have 3 more days but it burns and itches and hurts so bad i want to stop so annoyingits driving me crazy is it suppose to feel like this.quote:
Originally posted by uncle paul
Hi Gebgeroboys,
Thanks your kind comments re the treatment. I cannot advise you on the 3-week or 4-week options because I am not qualified to do so. My Derm told me 3-weeks applying Efudex twice daily. By the time day 20 had arrived I was counting the hours to my last application - at that stage I don't think that I could have gone on any further. However, I did apply a soothing cream called Traumeel thereafter and a week or so later I started to look and feel much better. I guess if you have enough Efudex cream left and can handle another week after day 21 then that's probably the way to go. The bottom line is that the treatment really does work and I am now 6-months down the line without a blemish on the previously affected parts of my face. I have to go back to the Derm next year April but would have no hesitation whatsoever to using Efudex again if I had to. Good luck with the next week or so - it's not pleasant but it's nice to know that it is only a temporary discomfort - so go for it!
|
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 10/19/2011 : 10:40:19
|
Hi Gebgeroboys,
Yup, all the way! That's why I said that I could not hang in after day 21! Having come so far it would be inadvisable to chuck just when the end is in sight. If you did so you might later regret not having completed the treatment. So all I can say is just grit your teeth and pray for the dawn of day 21! Recovery is pretty quick thereafter and just not having to put on the Edufex is a relief in itself. Good luck my friend, just comfort yourself that it just gets better and better once the treatment is complete. |
|
|
|
gebgeroboys
Philippines
2 Posts |
Posted - 10/21/2011 : 23:52:37
|
I made it 21 days today was the last time I put it on Efudex so happy. What will happen next will it peel or scab will my face still hurt burn and itch how long do you think. Thank you for all the info your very kind. quote:
Originally posted by uncle paul
Hi Gebgeroboys,
Yup, all the way! That's why I said that I could not hang in after day 21! Having come so far it would be inadvisable to chuck just when the end is in sight. If you did so you might later regret not having completed the treatment. So all I can say is just grit your teeth and pray for the dawn of day 21! Recovery is pretty quick thereafter and just not having to put on the Edufex is a relief in itself. Good luck my friend, just comfort yourself that it just gets better and better once the treatment is complete.
|
|
|
|
uncle paul
South Africa
14 Posts |
Posted - 10/22/2011 : 00:43:10
|
Hi Gebgeroboys,
Well done, that's showing true grit! Well, first of all just think that you will not have to put on Efudex again - ever! (hopefully) I used a soothing ointment Traumeel by HEEL German manufacturer - it's actually designed for sports injuries. It was suggested by my pharmacist, who had himself taken a 6-week course of Efudex and reckoned that it worked well for him. However, there are alternatives suggested on this site so scroll down and see what you can get locallyu. After about a week you will start to notice good changes and the discomfort will fade rapidly. The great thing to remember is that you get a bit better every day. After about 3-weeks or so you will start to look and feel like a film star. Oh yes, don't forget the SPF50+ sunblock and the big hat when out in the sun. |
|
|
|
deruo
Canada
16 Posts |
Posted - 10/24/2011 : 19:48:01
|
Hi everyone,
I wrote back in the early summer. I just started my Efudex treatment yesterday on my scalp and forehead (for a month) with the rest of my face to start next week (for 3 weeks).
So far nothing out of the ordinary but some itching.... but I know it's only two days so far ;-)
I have an appointment scheduled with my Dermo on November 1st when I hope to get a handful of prescriptions for Aquaphor and some anti-itch cream.
I don't know how work is going to go but not much time to worry. It looks like I may be moving house during the month of November so I'll have plenty to keep me busy!
|
|
|
|
sldavid
USA
2 Posts |
Posted - 10/24/2011 : 20:24:13
|
| The good news is that Aquaphor is sold over the counter and therefore no prescription is needed. I think you will find the itching dissapears once the scab is gone. Having a loose fitting bandage on the area also allows you to do a little touching of the wound when the itching starts driving you crazy! |
|
|
|
deruo
Canada
16 Posts |
Posted - 10/24/2011 : 21:09:18
|
I'm in Canada and asked the pharmacist the other day about it.
She said I needed a prescription for it, but that it seemed (according to her computer) to be much like Vaseline. (?!)
It's odd the differences between countries. My favorite back pain meds are only by prescription in the US but off the shelf here. A half decent corticosteriod creme over 1% and you need a prescription for it.
Sometimes it doesn't make sense. |
|
|
|
FlaLadyB
USA
12 Posts |
Posted - 10/25/2011 : 08:11:32
|
| It also doesnt make sense when Efudex costs about $300 a tube here (without insurance) and someone else can get it for $25... |
|
|
|
Topic |
|
efudex
